Consumers need access to information and resources about genetic information in a manner that is understandable. Librarians working with the public need to be aware of the issues surrounding genetics and resources to assist patrons in locating and evaluating sometimes complex and confusing information.
This class explores basic concepts such as genes and chromosomes and offers an overview of genetic disorders, genetic testing, genetic counseling, and the Human Genome Project. Ethical and legal issues associated with genetic disorders will be covered with regard to privacy, discrimination, and potential legislative impact on medicine and society. A variety of reliable health information resources will be demonstrated, including, but not limited to: Genetics Home Reference, ClinicalTrials.gov, CHID (Combined Health Information Database), NORD (National Organization for Rare Disorders), and MedlinePlus. This 4-hour hands-on class is intended for consumers, public librarians, and health sciences librarians who work with the public.
Carrie Iwema has been a molecular biology information specialist for the Health Sciences Library System at the University of Pittsburgh since 2007. She has a PhD in Neuroscience, a Masters in Library Science, and has recently become a Senior Member of the Academy of Health Information Professionals. Her interest in personal genomics and personalized medicine has motivated her to work on yet another degree starting fall 2013, a Masters in Bioethics.
This program is sponsored by the Rochester Regional Library Council and the National Network of Libraries of Medicine, Middle Atlantic Region.
Cost to attend:
FREE to RRLC members
$25 to members of other 3Rs councils
$35 to non-members